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Monday, April 15, 2013

Today's Events

I so badly want to ask God so many questions when events like this happen. I so badly want answers to life's tragic moments and events. We've covered before that I'm an answers kind of person. I need to know where this horrible evil comes from. I need to know how anyone can think that this type of terrorism makes sense. I want to ask these invisible bad guys what the Boston Marathon runners did to them. I want to know how the death of an innocent 8 year old boy will make anyone take their cause seriously.

We don't get the answers to these questions. We pray and ask God to watch over us and protect us. We pray to God to keep our loved ones safe and to keep the families of these victims close and comforted. When we give up on asking God for those things, the bad guys win. When we give up on humanity, the bad guys win. 

I don't care if you believe in God, the universe, karma, nothing, anything...it doesn't matter to me. My choice is God. It doesn't mean it's the right one, it's just the right one for me. That said, when things like this happen we must all come together and believe in each other. We must believe in the good of people. We must believe in the goodness of humanity. 

As I watch the videos of the explosions, I see so many people run TOWARDS the explosion. They don't run away and hide. They run towards it to help and to care for their fellow man. That is how the good guys win. That his how we defeat the bad guys. 

In the next few days, we are going to hear so much (some right, some wrong). We will hear about the bad guys who did this. We will hear about the bad guys who did horrible things in the past. While it's important that we know who our enemy is, I think it's almost as important to know who our allies are. I think it's important that we see more images of the good guys running towards the mayhem. I think it's important that we focus our attention on the good things people are doing to help their fellow man. 

I have realized that when events like this happen, it's really easy for me to sit and watch the news, read all the articles about what we're supposed to be scared of and looking for. What I've noticed is that it doesn't stop the next bad thing from happening. I am going to pray that they catch these bad guys and that they will pay for their hatred and the pain that they have caused. I am going to try to focus my attention, and the attention of my children, on the good guys. The police that find the bad guys, the doctors and nurses who heal the wounded, the friends and families of the wounded, the blood banks stepping up, the strangers who offer helping hands to those stranded in Boston without their belongings tonight. I'm going to focus my attention on the good guys because for me, and I'm not saying this has to work for you, but for me, this is how I beat the bad guys. I'm not going to live in fear of them because I know that if they come, the good guys will be there to help me and my loved ones. 

Sunday, April 14, 2013

Words

There are things that people have said to us that we hold onto forever. There are things that have been said, that no matter how hard we try, we can't forget. Hurtful things said in anger. Hurtful things said without thought or intention. 

Obviously there are words or names or things said by people in anger that are hurtful. These things can stick with someone forever. No matter how hard they try, they can't forget them. Knowing that they were said in anger doesn't make them go away. I am as guilty at this as the next person. I have said hurtful things to people.

I always tell my children to choose their words carefully. I always tell them that what you meant by what you said isn't nearly as important as how those words made someone feel. I tell them that if you say 10 nice things to someone and 1 mean thing to them, the thing they will remember is the mean thing. 

I believe that. I know that to be true. I know that because I remember really awful things that people have said to me. Not because I want to hold onto painful things but I think that if everyone is really honest, they remember those things too. I don't play them over and over in my head (ok, well on really bad days I tend to but...) They are things that are just there. 

 There are things that people say that we hold onto forever because they mean so much. A special phrase someone has said. A special moment with silly words that you exchange. Nobody thought, "this is something that will stay with them forever," they were just words exchanged between two people.

I love those memories. We all have them. They hold us over when times get tough. They are something to hold onto when there is chaos around us. We repeat them. We tell stories about people based on a simple phrase they have said. We hear them in our hearts as we fall asleep at night. 

I'm not really sure what the whole point of this whole thing is...I just feel like words are so important. I really hope that when I'm gone, or when people tell stories about me, or when people fall asleep at night, that the words that I have said with them and to them are good ones. 

Monday, April 1, 2013

HIV

HIV is a disease that, to be honest with you, I knew very little about. I knew the basics, or at least I thought I did. HIV is not something that I ever thought that I would come to have first hand knowledge about. I wish it were still like that.

One of my very best friends was diagnosed with HIV in March. I'll admit that I thought that maybe, a very tiny nagging maybe lived inside me when I first found out they were testing him. Then he called with the news that it was positive. Nothing could prepare me for that moment. Nothing could prepare me for what all of that meant.

My friend had made choices about sex that many of us have made. Without being horribly graphic, we're all aware of what safe sex is and a lot of have chosen not to always partake in safe sex all of the time. Well he met a girl, and when things seemed like they would be moving in a physical relationship direction, he went and got tested because he knew he'd not been very safe. That test was negative. He was told not to worry about being re-tested in 3 to 6 months because this test was negative. Unfortunately, to say it mildly, that test produced a false negative. I have come to learn that this is not really that uncommon.

Fast forward to 3ish years. He's married to this girl and they have a beautiful child. He got really sick in December and he hasn't been able to get better. So he visits a new doctor and she runs a bunch of tests and BAM...life changes forever. His wife and child have since been tested and miraculously, they have tested negative. His wife will have some more tests later down the road but at this point, she is HIV negative. Thank you God.

I have learned about HIV meds, CD4 counts, viral load counts, genothru (I think) tests, types of drugs people show a lot of resistance to, common ailments for HIV positive people. I truly believe that knowledge is power. I have educated myself as much as I can in what all of this means. I have made phone calls to different health departments. I've joined about 10 new email newsletter groups. I have looked up so many drugs that if I had a better memory, I could find my way around a pharmacy! It doesn't do much for my friend but it allows me to have hope. It allows me to tell him things with a little more accuracy and a little more peace of mind.

He's sick. He's in the hospital now with PCP, which is a type of pneumonia that is pretty specific for HIV/AIDS patients. He has other health issues which are causing the disease to spread more quickly. He's now considered to have AIDS. That classification has to do with the pcp and the fact that his CD4 cell count is low and his viral load count is high. When a person's CD4 count drops believe 200, they are considered to  have AIDS. That number can go back up but because it has been down, they will forever be classified in the AIDS category.

Him being sick has been a lot to handle emotionally. I can't begin to imagine how he and his wife feel. I will say this, since Anitra has died, it has made death seem a lot more real. Having him sick has made us feel as though death is once again at our doors. I told Tai the other night that we do not mourn the living and that we can be sad and scared but that we will not mourn him until it is time to. We will not give up hope in this battle until there is no more hope to be had. I believe that with all my heart.

I have shared this with you for a couple of reasons. The first being that it is what is going on in our lives right now. It is part of our daily life as we continue to pray and hope for him to get well again and I'm sharing that with you as much as I share the rest of our lives. I am sharing this because it's on my mind and because I have his permission to do so. It's the emotions that I'm experiencing and it makes me feel better to be able to "write" them out and have them out in the universe. I think some people feel that's narcissistic but that's a whole other entry." Another reason I am sharing is because it's a great teaching moment. Those of you with children, and those of you without, remember that these things can happen to you. They can happen to your brother, your sister, your niece, nephew, best friend. I could give a lecture on safe sex but I'll save that for the health teachers.

Mostly I share this because I am asking you to pray. Pray for my friend, his family and his friends. Pray for wisdom for the doctor's and pray for strength. Pray for God's will and mercy. Thank you for your prayers and thank you for allowing me to share this story.

Living

Thursday was my birthday (thank you all for the happy wishes). We were on our way to school and Rey said "mommy, today you're 36!" I corrected her and said "35." She got a very sad look on her face and said that she wished her mommy could be here so I could be 36." That was a pretty intense moment for me. She doesn't remember it but in that second, I knew my dad was right. I have to be okay for the future because they need to know that they'll be ok for the future. Those weren't his words, he said it much better than I, but  I get it. I told her that her mommy was forever with us and that it was okay for me to be 36 and it is. I have to be 36, 37, 40, 50, etc...without her. Not without her in my heart but without her body because THEY are going to be 18, 21, 25, 30, etc...without her and they need to know that it's ok that she's not here. 

It totally sucks that she's not here. Totally. Yet, we will be okay. We will carry on. We will not "move on" (I really hate it when people say that) but we will carry on. We will carry on in our lives. We will make new memories, meet new people, have lives. 

Sometimes I feel as though I'm learning to live all over again. A lot of times I feel like each experience is a new experience, a scary experience, because she is not here. She was so much a part of me that I'm not I am even knew for sure where she ended and I began. Steve used to laugh and say he had two wives. Our family considered us all one family. I think that's probably one of the harder parts of this. She was so much a part of every single day, every single memory, every single event. The good news is that each "first" that we have without her, we get to tell such fun stories about her from the previous years and events. It's not the same as if she were with us in body but it's like she's never really completely gone. 

There are only a few things that I remember from her service. One thing I remember though is that the pastor said that "death is in the shadows and while it's okay to see the shadows, we must live in the light." We must continue our lives in the light. I must continue in the light so that they can continue in the light. Life is going to move forward  for us. It must. So thank you Rey and thank you Dad for all your wisdom.